Vetenskapliga publikationer, 2007-2024

Författare med nuvarande eller tidigare anknytning till MMCUP står med fet stil.

Eriksson M, Bartonek Å. Orthosis use and ambulation in adults with myelomeningocele after orthotic management from childhood. Prosthetics and Orthotics International ():10.1097/PXR.0000000000000279, September 18, 2023. DOI: 10.1097/PXR.0000000000000279

Bartonek Å, Eriksson M. Physical function and activity, pain and health status in adults with myelomeningocele after orthotic management from childhood: a descriptive study. BMC Muskeloskeletal Disorder. 2023 (24:545)

Stockman J, Westbom L, Alriksson-Schmidt A. Pressure injuries are common in children with myelomeningocele: Results from a follow-up programme and register. Acta Pediatr. 2022. Vol 111 (8), 1566-1572.

Lindquist B, Jacobsson H, Strinnholm M, Peny- Dahlstrand M. A scoping review of cognition in spina bifida and its consequences for activity and participation throughout life. Acta Paediatr. 2022 Sep;111(9):1682-1694. doi: 10.1111/apa.16420. Epub 2022 Jun 5.

Peny- Dahlstrand M, Hofgren C, Lindquist B, Bergqvist L, Himmelman K. The Cognitive Orientation to daily Occupational Performance (CO-OP) Approach is superior to ordinary treatment for achievement of goals and transfer effects in children with cerebral palsy and spina bifida – a randomized controlled trial. DISABILITY AND REHABILITATION, published online 4 mar 2022.

Peny- Dahlstrand M, Hofgren C, Lindquist B, Bergqvist L, Himmelman K. Potential benefits of the cognitive orientation to daily occupational performance approach in young adults with spina bifida or cerebral palsy: a feasibility study. Disability and Rehabilitation, 2020, 42:2, 228-239, DOI: 10.1080/09638288.2018.1496152.

Alriksson-Schmidt A, Ong K, Reederc MR, Thibadeaud JK, Feldkamp ML. Site, frequency, and duration of pain in young children with spina bifida. Journal of Pediatric Rehabilitation Medicine: An Interdisciplinary Approach Throughout the Lifespan 14 (2021) 571–582 DOI:10.3233/PRM-190661.

Ehrén I, Hagman G, Lindbo L, Gabrielsson H, Bendt M, Seger Å. Cognitive challenges in persons with spina bifida: Bearing on urological dysfunctions? Neurourology and urodynamics. Volume39, Issue8, November 2020, Pages 2139-2145.

Öhrvall A-M, Bergqvist L, Hofgren C, Peny- Dahlstrand M. “With CO-OP I’m the boss” – experiences of the cognitive orientation to daily occupational performance approach as reported by young adults with cerebral palsy or spina bifida. Disability and Rehabilitation, 2020, 42:25, 3645-3652. DOI: 10.1080/09638288.2019.1607911.

Bendt M et al. Adults with spina bifida: A cross-sectional study of health issues and living conditions. Brain and Behavior. 2020;10:e01736.DOI: 10.1002/brb3.1736.

Rozenkrantz- Bodin et al. Ultrasound in Prenatal Diagnostics and Its Impact on the Epidemiology of Spina Bifida in a National Cohort from Denmark with a Comparison to Sweden. BioMed Research International Volume 2018, Article ID 9203985,

Alriksson-Schmidt A, Arner M, Westbom L, Krumlinde-Sundholm L, Nordmark E, Rodby-Bousquet E, Hägglund G. A combined surveillance program and quality register improves management of childhood disability. Disabil Rehabil. 2017; 39:830-6.

Persson M, Janeslätt G, Peny-Dahlstrand M. Daily time management in children with spina bifida. J Pediatr Rehabil Med. 2017; 10: 295–302.

Thibadeau J, Reeder MR, Andrews J, Ong K, Feldkamp ML, Rice S, Alriksson-Schmidt A. Understanding the Natural Progression of Spina Bifida: Prospective Study. JMIR Res Protoc. 2017 Sep 14;6(9):e180. doi:10.2196/resprot.7739.

Vu Minh Arnell M, Abrahamsson K. Urinary continence appears to enhance social participation and intimate relations in adolescents with myelomeningocele. J Pediatr Urol 2019 Feb;15(1):33.e1-33.e6. doi: 10.1016/j.jpurol.2018.08.008.

Alriksson-Schmidt AI, Thibadeau JK, Swanson ME, Marcus D, Carris KL, Siffel C, Ward E. The natural history of spina bifida in children pilot project: research protocol. JMIR Res Protoc. 2013 Jan 25;2(1):e2. doi: 10.2196/resprot.2209.

Alriksson-Schmidt A. Transition in young people with myelomeningocele. Dev Med Child Neurol. 2011 Jul;53(7):581-2. doi: 10.1111/j.1469-8749.2011.03945.x. Epub 2011 Mar 21. PubMed PMID: 21418203

Burström K, Bartonek Å, Broström EW, Sun S, Egmar AC. EQ-5D-Y as a health-related quality of life measure in children and adolescents with functional disability in Sweden: testing feasibility and validity. Acta Paediatr. 2014; 103:426-35.

Vu Minh Arnell M, Seljee Svedberg K, Lindehall B, Möller A, Abrahamsson K. Health-related quality of life compared to life situation and incontinence in adults with myelomeningocele: Is SF-36 a reliable tool? J Pediatr Urol. 2013; 9:559-66.

Vu Minh Arnell M(1), Seljee Svedberg K, Lindehall B, Möller A, Abrahamsson K. Peny-Dahlstrand M, Krumlinde Sundholm, L, Gosman-Hedström G. Patterns of participation in school-related activities and settings in children with spina bifida. Disabil Rehabil. 2013; 35:1821-7.

Donlau M, Mattsson S, Glad-Mattsson G. Children with myelomeningocele and independence in the toilet activity: a pilot study. Scand J Occup Ther. 2013 Jan;20(1):64-70.

Nilsson D, Svensson J, Korkmaz BA, Nelvig H, Tisell M. Decreased head circumference in shunt-treated compared with healthy children. J Neurosurg Pediatr. 2013; 12:483-90.

Mattsson S, Dahl M, Olsson I, Wendelius M, Westbom L, Åström E. A Swedish national follow-up programme for children and adolescents with myelomeningocele. Cerebrospinal Fluid Res 2009:6:S43.

Olsson I, Dahl M, Mattsson S, Wendelius M, Åström E, Westbom L. Medical problems in adolescents with myelomeningocele (MMC): an inventory of the Swedish MMC population born during 1986-1989. Acta Paediatr. 2007 96:446-9.