Vetenskapliga publikationer, 2007-2022

Författare med nuvarande eller tidigare anknytning till MMCUP står med fet stil.

Stockman J, Westbom L, Alriksson-Schmidt A. Pressure injuries are common in children with myelomeningocele: Results from a follow-up programme and register. Acta Pediatr. 2022. Vol 111 (8), 1566-1572.

Lindquist B, Jacobsson H, Strinnholm M, Peny- Dahlstrand M. A scoping review of cognition in spina bifida and its consequences for activity and participation throughout life. Acta Paediatr. 2022 Sep;111(9):1682-1694. doi: 10.1111/apa.16420. Epub 2022 Jun 5.

Peny- Dahlstrand M, Hofgren C, Lindquist B, Bergqvist L, Himmelman K. The Cognitive Orientation to daily Occupational Performance (CO-OP) Approach is superior to ordinary treatment for achievement of goals and transfer effects in children with cerebral palsy and spina bifida – a randomized controlled trial. DISABILITY AND REHABILITATION, published online 4 mar 2022.

Peny- Dahlstrand M, Hofgren C, Lindquist B, Bergqvist L, Himmelman K. Potential benefits of the cognitive orientation to daily occupational performance approach in young adults with spina bifida or cerebral palsy: a feasibility study. Disability and Rehabilitation, 2020, 42:2, 228-239, DOI: 10.1080/09638288.2018.1496152.

Alriksson-Schmidt A, Ong K, Reederc MR, Thibadeaud JK, Feldkamp ML. Site, frequency, and duration of pain in young children with spina bifida. Journal of Pediatric Rehabilitation Medicine: An Interdisciplinary Approach Throughout the Lifespan 14 (2021) 571–582 DOI:10.3233/PRM-190661.

Ehrén I, Hagman G, Lindbo L, Gabrielsson H, Bendt M, Seger Å. Cognitive challenges in persons with spina bifida: Bearing on urological dysfunctions? Neurourology and urodynamics. Volume39, Issue8, November 2020, Pages 2139-2145.

Öhrvall A-M, Bergqvist L, Hofgren C, Peny- Dahlstrand M. “With CO-OP I’m the boss” – experiences of the cognitive orientation to daily occupational performance approach as reported by young adults with cerebral palsy or spina bifida. Disability and Rehabilitation, 2020, 42:25, 3645-3652. DOI: 10.1080/09638288.2019.1607911.

Bendt M et al. Adults with spina bifida: A cross-sectional study of health issues and living conditions. Brain and Behavior. 2020;10:e01736.DOI: 10.1002/brb3.1736.

Rozenkrantz- Bodin et al. Ultrasound in Prenatal Diagnostics and Its Impact on the Epidemiology of Spina Bifida in a National Cohort from Denmark with a Comparison to Sweden. BioMed Research International Volume 2018, Article ID 9203985,

Alriksson-Schmidt A, Arner M, Westbom L, Krumlinde-Sundholm L, Nordmark E, Rodby-Bousquet E, Hägglund G. A combined surveillance program and quality register improves management of childhood disability. Disabil Rehabil. 2017; 39:830-6.

Persson M, Janeslätt G, Peny-Dahlstrand M. Daily time management in children with spina bifida. J Pediatr Rehabil Med. 2017; 10: 295–302.

Thibadeau J, Reeder MR, Andrews J, Ong K, Feldkamp ML, Rice S, Alriksson-Schmidt A. Understanding the Natural Progression of Spina Bifida: Prospective Study. JMIR Res Protoc. 2017 Sep 14;6(9):e180. doi:10.2196/resprot.7739.

Vu Minh Arnell M, Abrahamsson K. Urinary continence appears to enhance social participation and intimate relations in adolescents with myelomeningocele. J Pediatr Urol 2019 Feb;15(1):33.e1-33.e6. doi: 10.1016/j.jpurol.2018.08.008.

Alriksson-Schmidt AI, Thibadeau JK, Swanson ME, Marcus D, Carris KL, Siffel C, Ward E. The natural history of spina bifida in children pilot project: research protocol. JMIR Res Protoc. 2013 Jan 25;2(1):e2. doi: 10.2196/resprot.2209.

Alriksson-Schmidt A. Transition in young people with myelomeningocele. Dev Med Child Neurol. 2011 Jul;53(7):581-2. doi: 10.1111/j.1469-8749.2011.03945.x. Epub 2011 Mar 21. PubMed PMID: 21418203

Burström K, Bartonek Å, Broström EW, Sun S, Egmar AC. EQ-5D-Y as a health-related quality of life measure in children and adolescents with functional disability in Sweden: testing feasibility and validity. Acta Paediatr. 2014; 103:426-35.

Vu Minh Arnell M, Seljee Svedberg K, Lindehall B, Möller A, Abrahamsson K. Health-related quality of life compared to life situation and incontinence in adults with myelomeningocele: Is SF-36 a reliable tool? J Pediatr Urol. 2013; 9:559-66.

Vu Minh Arnell M(1), Seljee Svedberg K, Lindehall B, Möller A, Abrahamsson K. Peny-Dahlstrand M, Krumlinde Sundholm, L, Gosman-Hedström G. Patterns of participation in school-related activities and settings in children with spina bifida. Disabil Rehabil. 2013; 35:1821-7.

Donlau M, Mattsson S, Glad-Mattsson G. Children with myelomeningocele and independence in the toilet activity: a pilot study. Scand J Occup Ther. 2013 Jan;20(1):64-70.

Nilsson D, Svensson J, Korkmaz BA, Nelvig H, Tisell M. Decreased head circumference in shunt-treated compared with healthy children. J Neurosurg Pediatr. 2013; 12:483-90.

Mattsson S, Dahl M, Olsson I, Wendelius M, Westbom L, Åström E. A Swedish national follow-up programme for children and adolescents with myelomeningocele. Cerebrospinal Fluid Res 2009:6:S43.

Olsson I, Dahl M, Mattsson S, Wendelius M, Åström E, Westbom L. Medical problems in adolescents with myelomeningocele (MMC): an inventory of the Swedish MMC population born during 1986-1989. Acta Paediatr. 2007 96:446-9.