{"id":1748,"date":"2020-05-27T13:56:03","date_gmt":"2020-05-27T12:56:03","guid":{"rendered":"http:\/\/mmcup.se\/?page_id=1748"},"modified":"2023-10-01T12:16:19","modified_gmt":"2023-10-01T11:16:19","slug":"vad-ar-mmcup","status":"publish","type":"page","link":"https:\/\/mmcup.se\/?page_id=1748","title":{"rendered":"Vad \u00e4r MMCUP?"},"content":{"rendered":"\n<p class=\"wp-block-paragraph\" style=\"font-size:18px\">MMCUP \u00e4r ett uppf\u00f6ljningsprogram f\u00f6r personer f\u00f6dda med ryggm\u00e4rgsbr\u00e5ck. Inom v\u00e5rden anv\u00e4nder man f\u00f6rkortningen MMC n\u00e4r man talar om ryggm\u00e4rgsbr\u00e5ck. MMC betyder <strong>m<\/strong>yelo-<strong>m<\/strong>eningo-<strong>c<\/strong>ele, grekiska ord f\u00f6r ryggm\u00e4rg, hinna och br\u00e5ck. UP st\u00e5r f\u00f6r <strong>u<\/strong>ppf\u00f6ljnings<strong>p<\/strong>rogram.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\" style=\"font-size:18px\">Information fr\u00e5n MMCUP samlas i en sorts kunskapsbank p\u00e5 internet, ett kvalitetsregister. Sjukhusen anv\u00e4nder olika operationer och behandlingar. Information samlas f\u00f6r att f\u00f6rst\u00e5 vilken behandling som ger b\u00e4st resultat och b\u00e4st livskvalitet vid ryggm\u00e4rgsbr\u00e5ck. Med kvalitetsregistret g\u00e5r det att f\u00e5 en \u00f6verblick \u00f6ver detta i Sverige.<\/p>\n\n\n\n<p class=\"has-medium-font-size wp-block-paragraph\"><strong>Vad vill man uppn\u00e5 med MMCUP?<\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\" style=\"font-size:18px\">Det viktigaste m\u00e5let \u00e4r att se till att personer med ryggm\u00e4rgsbr\u00e5ck slipper on\u00f6diga problem med kroppen, problem som kan uppst\u00e5 under hela livet. Det kan handla om allergireaktioner, benbrott eller felst\u00e4llningar i leder och skelett, problem med njurar, urinbl\u00e5sa, tarm eller andra besv\u00e4r och f\u00f6rs\u00e4mringar.<\/p>\n\n\n\n<h2 class=\"wp-block-heading has-medium-font-size\"><strong>Hur g\u00e5r kunskapsinsamlandet till?<\/strong><\/h2>\n\n\n\n<p class=\"wp-block-paragraph\" style=\"font-size:18px\">Personer f\u00f6dda med ryggm\u00e4rgsbr\u00e5ck har flera behandlare som f\u00f6ljer dem genom \u00e5ren. Det kan exempelvis vara arbetsterapeut, uroterapeut, fysioterapeut, psykolog och l\u00e4kare med olika specialiseringar. De unders\u00f6ker personens funktionsf\u00f6rm\u00e5ga enligt uppf\u00f6ljningsprogrammet. Uppgifterna skrivs in i kvalitetsregistret f\u00f6r att man ska kunna f\u00f6lja hur olika funktioner utvecklas \u00f6ver tid.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\" style=\"font-size:18px\">Uppgifter om Dig med ryggm\u00e4rgsbr\u00e5ck samlas in bara om en v\u00e5rdnadshavare, eller en vuxen person med ryggm\u00e4rgsbr\u00e5ck, f\u00e5tt information om hur MMCUP fungerar. Den som inte vill vara med har r\u00e4tt att s\u00e4ga nej till att delta i kvalitetsregistret.<\/p>\n\n\n\n<h2 class=\"wp-block-heading has-medium-font-size\"><strong>Hur anv\u00e4nds MMCUP?<\/strong><\/h2>\n\n\n\n<p class=\"wp-block-paragraph\" style=\"font-size:18px\">Uppgifterna samlas i kvalitetsregistrets databas. Uppgifterna anv\u00e4nds f\u00f6r att f\u00f6lja utveckling av olika funktioner och v\u00e4rden \u00f6ver l\u00e5ng tid p\u00e5 gruppniv\u00e5. Den person som behandlar eller f\u00f6ljer funktion hos en enskild deltagare kan ta fram aktuell deltagares tidigare rapporter och se hur funktionen utvecklats \u00f6ver l\u00e5ng tid. <\/p>\n\n\n\n<p class=\"wp-block-paragraph\" style=\"font-size:18px\">MMCUP ska s\u00e4kra kvalitet i behandlingen, ta fram statistik, utg\u00f6ra underlag f\u00f6r antalsber\u00e4kning f\u00f6r klinisk forskning och ska ocks\u00e5 kunna anv\u00e4ndas f\u00f6r forskning inom h\u00e4lso- och sjukv\u00e5rden efter s\u00e4rskilt tillst\u00e5nd. All anv\u00e4ndning i forskningssyfte kr\u00e4ver godk\u00e4nnande av etikpr\u00f6vningsmyndigheten.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\" style=\"font-size:18px\">Ett viktigt m\u00e5l med MMCUP \u00e4r att f\u00e5 j\u00e4mn och god kvalitet p\u00e5 v\u00e5rden i hela landet. Med MMCUP kan insatser och resultat av behandlingarna p\u00e5 olika st\u00e4llen i landet  j\u00e4mf\u00f6ras. Resultaten publiceras bland annat i \u00e5rsrapporter p\u00e5 hemsidan mmcup.se.<\/p>\n\n\n\n<h2 class=\"wp-block-heading has-medium-font-size\"><strong>Kan enskilda personer identifieras i MMCUP?<\/strong><\/h2>\n\n\n\n<p class=\"wp-block-paragraph\" style=\"font-size:18px\">Nej, all presentation av resultat sker anonymt. Ingen som inte f\u00e5tt s\u00e4rskilt tillst\u00e5nd f\u00e5r se vad som sparats i kvalitetsregistret. Inloggning f\u00f6r att f\u00e5 tillg\u00e5ng till uppgifterna sker p\u00e5 ett s\u00e4kert s\u00e4tt enligt datainspektionens regler. <\/p>\n\n\n\n<h2 class=\"wp-block-heading has-medium-font-size\"><strong>Vill du veta mer?<\/strong><\/h2>\n\n\n\n<p class=\"wp-block-paragraph\" style=\"font-size:18px\">Kontakta MMCUP:s registersekreterare Gunilla Petersson, som besvarar dina fr\u00e5gor eller ordnar kontakt med r\u00e4tt person.<br>E-post: <a href=\"mailto:info@mmcup.se\">info@mmcup.se<\/a><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><\/p>\n<div class=\"pdfprnt-buttons pdfprnt-buttons-page pdfprnt-bottom-left\"><a href=\"https:\/\/mmcup.se\/index.php?rest_route=%2Fwp%2Fv2%2Fpages%2F1748&print=print\" class=\"pdfprnt-button pdfprnt-button-print\" target=\"_blank\" ><img data-recalc-dims=\"1\" decoding=\"async\" src=\"https:\/\/i0.wp.com\/mmcup.se\/wp-content\/plugins\/pdf-print\/images\/print.png?ssl=1\" alt=\"image_print\" title=\"Print Content\" \/><span class=\"pdfprnt-button-title pdfprnt-button-print-title\">Skriv ut sida<\/span><\/a><\/div>","protected":false},"excerpt":{"rendered":"<p>MMCUP \u00e4r ett uppf\u00f6ljningsprogram f\u00f6r personer f\u00f6dda med ryggm\u00e4rgsbr\u00e5ck. Inom v\u00e5rden anv\u00e4nder man f\u00f6rkortningen MMC n\u00e4r man talar om ryggm\u00e4rgsbr\u00e5ck. MMC betyder myelo-meningo-cele, grekiska ord f\u00f6r ryggm\u00e4rg, hinna och br\u00e5ck. UP st\u00e5r f\u00f6r uppf\u00f6ljningsprogram. Information fr\u00e5n MMCUP samlas i en sorts kunskapsbank p\u00e5 internet, ett kvalitetsregister. Sjukhusen anv\u00e4nder olika operationer och behandlingar. Information samlas f\u00f6r [&hellip;]<\/p>\n","protected":false},"author":4,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"site-sidebar-layout":"default","site-content-layout":"","ast-site-content-layout":"default","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","theme-transparent-header-meta":"","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"set","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"footnotes":""},"class_list":["post-1748","page","type-page","status-publish","hentry"],"jetpack_sharing_enabled":true,"post_mailing_queue_ids":[],"_links":{"self":[{"href":"https:\/\/mmcup.se\/index.php?rest_route=\/wp\/v2\/pages\/1748","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/mmcup.se\/index.php?rest_route=\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/mmcup.se\/index.php?rest_route=\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/mmcup.se\/index.php?rest_route=\/wp\/v2\/users\/4"}],"replies":[{"embeddable":true,"href":"https:\/\/mmcup.se\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=1748"}],"version-history":[{"count":17,"href":"https:\/\/mmcup.se\/index.php?rest_route=\/wp\/v2\/pages\/1748\/revisions"}],"predecessor-version":[{"id":3754,"href":"https:\/\/mmcup.se\/index.php?rest_route=\/wp\/v2\/pages\/1748\/revisions\/3754"}],"wp:attachment":[{"href":"https:\/\/mmcup.se\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=1748"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}