{"id":1754,"date":"2020-05-27T14:12:27","date_gmt":"2020-05-27T13:12:27","guid":{"rendered":"http:\/\/mmcup.se\/?page_id=1754"},"modified":"2023-11-24T17:39:40","modified_gmt":"2023-11-24T16:39:40","slug":"information-om-forskningsprojekt","status":"publish","type":"page","link":"https:\/\/mmcup.se\/?page_id=1754","title":{"rendered":"Att leva med cerebral pares och ryggm\u00e4rgsbr\u00e5ck \u2013 forskningsprojekt"},"content":{"rendered":"\n<p class=\"wp-block-paragraph\" style=\"font-size:18px\">Under perioden 2016-2020 genomf\u00f6r forskare knutna till de nationella kvalitetsregistren CPUP och MMCUP ett st\u00f6rre forskningsprojekt med titeln &#8221;Att leva med cerebral pares och ryggm\u00e4rgsbr\u00e5ck \u2013 h\u00e4lsom\u00e4ssiga och socioekonomiska konsekvenser av att leva med medf\u00f6dda funktionsneds\u00e4ttningar&#8221;. <br>Syftet med projektet \u00e4r att unders\u00f6ka konsekvenser av att leva med cerebral pares (CP) eller myelomeningocele (MMC) i Sverige, i termer av h\u00e4lsa, \u00f6verlevnad, utbildning, arbete och inkomst. Projektet behandlar olika grupper, barn med CP\/MMC, vuxna med CP\/MMC samt f\u00f6r\u00e4ldrar vars barn har CP eller MMC. Resultaten fr\u00e5n studien kommer att publiceras i vetenskapliga tidskrifter, p\u00e5 CPUP\/MMCUPs hemsidor i mer tillg\u00e4ngligt, l\u00e4ttl\u00e4st format, samt i R\u00f6relse.<br><\/p>\n\n\n\n<p class=\"wp-block-paragraph\" style=\"font-size:18px\">Projektet anv\u00e4nder data fr\u00e5n nationella register fr\u00e5n Statistiska Centralbyr\u00e5n och Socialstyrelsen samt CPUP (www.cpup.se) eller MMCUP (www.mmcup). Informationen forskarna har tillg\u00e5ng till \u00e4r anonymiserad s\u00e5 att forskarna inte kan identifiera enskilda individer. Dataf\u00f6rvaringen sker p\u00e5 datorer som inte \u00e4r uppkopplade mot internet p\u00e5 l\u00e5sta avdelningar p\u00e5 Lunds Universitet och som skyddas av kryptering.<br><\/p>\n\n\n\n<p class=\"wp-block-paragraph\" style=\"font-size:18px\">Forskningshuvudman f\u00f6r projektet \u00e4r Region Sk\u00e5ne.<br>Projektet har genomg\u00e5tt etisk pr\u00f6vning och etiskt godk\u00e4nnande finns.<br><\/p>\n\n\n\n<p class=\"wp-block-paragraph\" style=\"font-size:18px\">Deltagande i projektet \u00e4r frivilligt och personer med ryggm\u00e4rgsbr\u00e5ck som f\u00f6ljs i MMCUP, men som inte \u00f6nskar delta i forskningsprojektet kan meddela registerh\u00e5llare Annika Lundkvist Josenby  via e-post annika.lundkvistjosenby@skane.se eller MMCUPs registersekreterare, Gunilla Petersson via e-post info@mmcup.se.<br><\/p>\n<div class=\"pdfprnt-buttons pdfprnt-buttons-page pdfprnt-bottom-left\"><a href=\"https:\/\/mmcup.se\/index.php?rest_route=%2Fwp%2Fv2%2Fpages%2F1754&print=print\" class=\"pdfprnt-button pdfprnt-button-print\" target=\"_blank\" ><img data-recalc-dims=\"1\" decoding=\"async\" src=\"https:\/\/i0.wp.com\/mmcup.se\/wp-content\/plugins\/pdf-print\/images\/print.png?ssl=1\" alt=\"image_print\" title=\"Print Content\" \/><span class=\"pdfprnt-button-title pdfprnt-button-print-title\">Skriv ut sida<\/span><\/a><\/div>","protected":false},"excerpt":{"rendered":"<p>Under perioden 2016-2020 genomf\u00f6r forskare knutna till de nationella kvalitetsregistren CPUP och MMCUP ett st\u00f6rre forskningsprojekt med titeln &#8221;Att leva med cerebral pares och ryggm\u00e4rgsbr\u00e5ck \u2013 h\u00e4lsom\u00e4ssiga och socioekonomiska konsekvenser av att leva med medf\u00f6dda funktionsneds\u00e4ttningar&#8221;. Syftet med projektet \u00e4r att unders\u00f6ka konsekvenser av att leva med cerebral pares (CP) eller myelomeningocele (MMC) i Sverige, [&hellip;]<\/p>\n","protected":false},"author":4,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"site-sidebar-layout":"default","site-content-layout":"default","ast-site-content-layout":"default","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","theme-transparent-header-meta":"default","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"set","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"footnotes":""},"class_list":["post-1754","page","type-page","status-publish","hentry"],"jetpack_sharing_enabled":true,"post_mailing_queue_ids":[],"_links":{"self":[{"href":"https:\/\/mmcup.se\/index.php?rest_route=\/wp\/v2\/pages\/1754","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/mmcup.se\/index.php?rest_route=\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/mmcup.se\/index.php?rest_route=\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/mmcup.se\/index.php?rest_route=\/wp\/v2\/users\/4"}],"replies":[{"embeddable":true,"href":"https:\/\/mmcup.se\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=1754"}],"version-history":[{"count":5,"href":"https:\/\/mmcup.se\/index.php?rest_route=\/wp\/v2\/pages\/1754\/revisions"}],"predecessor-version":[{"id":3857,"href":"https:\/\/mmcup.se\/index.php?rest_route=\/wp\/v2\/pages\/1754\/revisions\/3857"}],"wp:attachment":[{"href":"https:\/\/mmcup.se\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=1754"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}